For PCH Families:
Being Present, Helping, Networking

The Diagnosis and Frequently Asked Questions: Here you will find frequently asked questions and basic information about the disease and how to live with it.

There Are Families With PCH2 Children All Over the World. This is where we want to show you that you are not alone, even though PCH2 is very rare. We are a strong community.

Here you will find tips and tricks for dealing with the challenges of living with PCH2.

Our Life With PCH2: In this section some of our families share their stories about life with a child with PCH2.

Here you will find the latest news from the world of PCH2 as well as event information related to the disease and the research into it.