You Are Not Alone! There Are Families With PCH2 Children All Over the World.
When you receive the diagnosis of PCH2, your world turns upside down. Nothing is as it was planned and it may feel like all support was taken away from you. Thousands of questions and uncertainties will appear. In addition to caring for child with a disability, you will have to deal with feelings of overload, anger, sadness, desperation, as well as many organizational issues.
The aim of PCH2cure is to provide information, guidance and support.
There are many PCH2 families who, despite all the challenges, achieve a good quality of life for the PCH2 children, their siblings and parents. This website is intended to help your family succeed in doing the same.
This is the right place for everyone who:
- has just been diagnosed with PCH2
- already has an older child with PCH2
- is looking for information, help or ways to connect
Treatment Is Possible. Support Our Research With a Donation.
Please support the work of PCH2cure with your donation. The more funds we raise, the faster we can progress on the path to a cure.
