What to expect
Having a child with a very rare disease often raises questions that few doctors or researchers can answer.
With our “Meet the expert” online consultation, we want to give you the opportunity to ask your specific questions about PCH2 in a live setting.
In our online session on November 10, 2025 at 8:00 p.m. CET, Alice Kuhn will speak about nutrition and gastrointestinal problems in PCH2. Topics include questions about food consistency, both for oral feeding and feeding via a feeding tube, as well as the digestive process and bowel movements.
In a subsequent open Q&A, Alice Kuhn and Dr. Andrea Bevot will be available to answer your questions and those of other participants live.
Physician Alice Kuhn works in pediatric neurology at the University of Freiburg Medical Center. In addition to her research on PCH2, she takes care of affected children and their families.
Dr. Andrea Bevot is a senior attending physician in pediatric neurology at University Hospital Tübingen and head of the Social Pediatric Center there. She cares for many children with PCH2.
For planning purposes, please register your attendance using the form below. You are welcome to send us your questions in advance using the “Remarks” field in the registration form. It will help our experts better prepare for the Q&A session.
We look forward to your participation!
Speaker
Alice Kuhn
