It takes the commitment of many people to raise awareness of a disease as rare as PCH2, help find supporters and provide the best possible support for patients and their families.
Ideally worldwide.
This is the only way we can gather knowledge, make it available for research and share new findings and support options with everyone.
Ideally worldwide.
Support PCH2cure
Do you have a child with PCH2? Are you just as passionate as we are about advancing research, raising awareness of the disease and connecting and supporting affected families?
Are you interested in bringing PCH2 families in your country closer together, drawing on the many years of experience of the PCH2cure team? Would you like to work alongside the team and act as a link between PCH2cure and the affected families in your country?
Then support the work of PCH2cure by becoming a National Ambassador for PCH2 in your country!
Get in touch via our contact form!
Further help is always welcome!
Here is what you could do:
- Donate or find donors for PCH2cure
- Spread the word about PCH2 and PCH2cure: Share our homepage/projects etc.
- Take part in PCH2cure workshops or surveys
- Share your story
- And much more
