a woman and a boy playing with balloons
© Andrea Katheder

Life Hacks

This section contains articles on various issues relating to everyday life with PCH2, explaining the symptoms of the condition and offering advice on how to deal with them.

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Parents of affected children have reported that their children assume a C-shaped posture over a longer period of time, sometimes for several hours. The children seem to feel highly uncomfortable;…

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Feeding difficulties is a broad term. Overall, a feeding situation is considered abnormal if the duration of a meal exceeds 30 minutes, if very frequent meals are necessary (more than…

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