Everyone is talking about the PCH2cure project! Various media outlets are covering us and reporting on our numerous activities.
Overview of all press reports on PCH2cure
2026
A report by FOCUS online about Axel Lankenau and his two sons, who have PCH2, his efforts on behalf of other children with the disease, and his call for financial support for urgently needed research in German language.
2025
Video from FOCUS online about the Cruise4Life featuring 28 children with PCH and their families (Audiotrack available in English language).
2023
Award for the Development of a Treatment for the Hereditary Neurological Disorder PCH2a: Press release in German language from the Eva Luise and Horst Köhler Foundation announcing the presentation of their research prize to our researchers Prof. Dr. Simone Mayer and Dr. Julia Matilainen, as well as Dr. Axel Lankenau of the PCH-Familie e.V. association.
An interview in German language conducted by the nonprofit Hertie Foundation with Dr. Axel Lankenau, father of two sons with PCH2a, and Prof. Dr. Simone Mayer, a molecular biologist and researcher in the field of PCH2.
2022
Press release in German language from the University of Tübingen regarding funding from the Chan Zuckerberg Initiative to find a treatment for the rare inherited neurological disorder PCH2.
Announcement from the Chan Zuckerberg Initiative regarding its funding of the PCH2cure project, in English language: “PCH2cure: Revealing Disease Mechanisms to Cure PCH2”.
Publications in academic journals on research conducted as part of the PCH2cure project
In addition to a series of press releases about our project, there are also several scientific publications that were produced as part of the PCH2cure project.
